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CITY, N.D. (NewsDakota.com) – A rare illness is just that; rare. But for a family in Grace City, North Dakota, it’s anything but rare.

Jay and Laura Kulsrud are the parents of Lane, Tanner and Ty Kulsrud and all three boys have been diagnosed with PKAN. PKAN is a form of Neurodegeneration with Brain Iron Accumulation, also known as NBIA. NBIA develops when iron accumulates in the brain, resulting in nerve damage and other debilitating symptoms.

Right now, a cure doesn’t exists to help treat the rare disease. A petition was created by someone from Carrington in order to expedite the Food and Drug Administration’s work on the drug RE-024. The drug is an experimental drug that is given to patients with PKAN. Because the drug is experimental, it is not approved for full distribution.

The petition needs 90,920 total signatures by September 12th, 2014 in order to get the Obama Administration to look at urging the FDA to the accelerated approval of the RE-024 drug. Currently, there are only 9,080 total signatures on the petition.

If you are interested in voting to help accelerate the approval of the drug, click here. If you want to learn more about the condition and the Kulsrud Family, you can visit their Facebook page by clicking here.